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Record data

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  "cid": "bafyreih4umwacsajpjvaihgcufp5xnct6vvqsaqs47ls3umphrn4iancnu",
  "value": {
    "text": "HHS is skipping #RareDiseaseDay2025 – \"For children and adults with rare diseases, even a momentary pause in funding for these programs or agencies has devastating, life-altering consequences.\"\n\nwww.axios.com/2025/02/25/r...",
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        "uri": "https://www.axios.com/2025/02/25/rare-disease-meeting-delayed-hhs",
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          "mimeType": "image/jpeg",
          "size": 211183
        },
        "title": "Rare disease meeting gets pushed off by HHS",
        "description": "Individual rare diseases are, by definition, uncommon. But with thousands of rare diseases, they represent a large block of patients."
      }
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    "langs": [
      "en"
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    "createdAt": "2025-02-26T12:25:11.365Z"
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}